Gard against being ill-informed …

Anyone following the Charlie Gard story in the UK?

https://www.vox.com/identities/2017/7/6/15923758/charlie-gard-global-controversy-trump-francis

Read the entire article if you are unfamiliar.

 

And here is what one of our resident bloggers believes.

Certainly the decision should not be left up to a hospital bureaucracy whose best interests lay in exterminating costly patients.  And if Chris and Connie are making arrangements to to take Charlie out of said hospital than what is the real problem here?

https://freedomthroughempowerment.wordpress.com/2017/07/02/parental-choice/

 

And here’s an except from the article.

 ….even the (unnamed) doctor behind the experimental treatment in the US agreed, upon seeing additional documentation, that it was “unlikely that he will improve with that [experimental] therapy.”

Even if the treatment could slow further progression of the disease (something that also would be unlikely, according to documentation in Justice Francis’s decision), it could not reverse existing damage. The remainder of Charlie’s life would be painful: Ormond Street specialists believe Charlie is capable of experiencing pain, though not expressing it, a factor in the court’s final decision.

 

 

My emphasis.

 

 

Ark

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17 thoughts on “Gard against being ill-informed …

  1. End-of-life care is something most of us don’t think about until we find ourselves or a loved one in an inevitable decline. As a society, we do not handle death well. The effort to keep a person alive (with or without pain) to satisfy our own emotional needs is, I think, ultimately very selfish.

    The person who commented that the hospital’s best interests lay in exterminating a costly patient, must not be living in North America. Here, if there is insurance to cover it, a person can be kept alive for a very long time because the benefits of the funding outweigh the cost of the use of hospital resources. When my husband was dying, he was expected to live for a month in the hospice. I sometimes wonder if he was able to live there for nine months only because he had good insurance.

    Liked by 4 people

  2. In 2006 I had to confront this exact dilemma with my Mom regarding her (late) husband in hospice care for 8-months after having a massive stroke 10-months earlier. He ended up in 24/7 care, wheel-chair bound, with little motor skills, and no speech. When he was in discomfort or pain it was sometimes impossible to perceive due to his deteriorated physical and verbal state. There came a time — his last 2-months — where his quality of life, as we humans have best learned its definition and dynamics, was simply non-existent. Mom and I deduced that he was and had been trying to tell us that he wanted to move on, pass on into peace! We knew him well enough that he had no fear of death whatsoever and he would most likely demand that we stop the painful suffering! The last month saw him have no less than 5 urinary infections based on his moanings in pain. 😦

    For Charlie Gard, his situation is so much worse. And the present brain damage cannot be reversed!!! Wow.

    Liked by 2 people

    1. Our family had to face a similar issue after one of my brothers was involved in a serious car accident.
      And this is why such revolting comments as you will find on Tricia’s blog are all the more Ignorant, heartless and disgusting, especially from a rank ignoramus such as Wally Fry.

      Liked by 1 person

      1. That doesn’t surprise me Ark if Wally and Tricia line-up in “world-views.” I was very pleased recently to read that following the state of Oregon, the state of California — where a lot of intellectual progressives reside along with Oregon & Washington — passed in June 2016 a “Death with Dignity” law. For more information:

        https://www.deathwithdignity.org/states/california/

        If we independent secular Freethinkers don’t stay fully alert to the constant push by Conservatives and Evangy-Fundies to form a perfect theocracy, as well as fight for basic human decency free of bigotry, misogyny, discrimination, racism, patriarchy, and the list goes on and on throughout ALL of civilized history… think what devolving world we’d be on right now. Yikes! 😮

        Liked by 2 people

        1. The irony here of course is that the current UK government is conservative!
          And I am reasonably confident the costs would not have been a factor. Some may consider the British National Health not up to scratch but I can personally vouch for it, and in general the staff are top notch. My sister being one.

          Liked by 1 person

          1. Having many mates/buddies in football/futebol from Europe, including the UK, they’d agree with you and your sister too. Those players who have lived and played in the U.S. for at least two or several league seasons say that by comparisons there is not a huge difference in quality medicine & healthcare. Waiting periods for important or critical surgeries (but not life-threatening) were apparently the biggest headache in the UK they said.

            Liked by 1 person

            1. Agreed. My sister’s youngest suffered from a rare form of leukemia when he was born. Not having seen the nipper and the chance he might not pull through I flew over.
              He is fine now. His care was incredible and my sister was with him all through the chemo.

              One of my mates from my hairdressing days recently had to undergo some sort of heart valve treatment.
              He could not sing the praises of the hospital and the staff high enough.
              Call an ambulance over here and before they send one , as my dad would say, ”….they want to know the ins and outs of a cat’s backside”

              This poor kid’s condition has been turned into a frakking media feeding frenzy.
              Meanwhile …. shall we try to calculate how many children have died of dysentery or malnutrition since this debacle began?

              I wonder why the god-bothers aren’t camped outside the hospital or packing the churches praying to their gods for the kid?
              Fucking Hypocrites! They utterly disgust me one and all.

              Liked by 1 person

    1. I think the frustrating thing for seniors is that, when one reaches a ”certain age”, what ever this is, one is viewed like some sort of senile old crock. It would/will drive me round the twist.
      Then again, in the States where the impression is that half the legal profession seem to be ”Ambulance Chasers” I can appreciate the doctor’s position.
      A change in mindset as well as change in law perhaps?

      Liked by 2 people

  3. The case is going to court again. How heartbreaking for the family. We had a very sick child, one of a pair of twins, who was brilliantly looked after by the NHS and whose prospects were very poor at one point. We were lucky and he is now the father of twins himself. I still can’t quite imagine their pain.

    Like

    1. Yes, I read. But much seems to be obscured.
      No one is saying there will be a reversal of the brain damage. Apparently there won’t be. The claim is the drug might be able to stop further deterioration.

      And there is the pain of course ….

      The parents pain is emotional.
      If the child dies, then their pain will pass.
      If he lives …. well, his pain will remain.

      Liked by 1 person

      1. My feeling is to let him go in peace. I think I would feel the same if he were mine, in pain and with irreversible brain damage but I haven’t walked in his parents’ shoes……..

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        1. Well, our family has been there, with one of my brothers.
          It almost broke us. But we survived. Life goes on.
          It irks me to the core that so much time energy, and, as crass as it sounds, money is being spent on this … bloody circus … when goodness knows how many kids have died in the interim of malnutrition and dysentery, to name just two preventable causes of death.
          And once the decision has been finalised, the circus will move on.
          Although the Sun will probably be vying for an exclusive already, and maybe Macmillan will be after the book rights. And Universal might be interested in the film if they can find a decent scriptwriter and if Tom Cruise and Emily Blunt are available.

          Sigh … Humans. So sad.

          Liked by 1 person

        2. There was a TV documentary recently (at least I saw it recently) that was about a child “born without a brain” … or at least such a small one as to be non-functional. He had hydrocephalus and the cerebrospinal fluid had filled his skull so much that it had reduced the size of his brain to a tiny “blob.” Doctors said he would never be normal, if he survived at all.

          However, his parents wouldn’t accept this diagnosis and worked with him on a daily basis, trying to stimulate what little brain he had. As a result (to make a long story short), his brain eventually grew and crowded out the cerebrospinal fluid to the extent he could talk, walk (with some degree of paralysis), and perform other activities that were once thought impossible.

          I mention this only because sometimes parents just refuse to give up. Occasionally, they are rewarded for their perseverance. But each case must be judged on its individual merits, and in the Gard case, well … I have nothing more to say.

          Liked by 2 people

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